Adenoid Cystic Carcinoma Organization International
The purpose of the Adenoid Cystic Carcinoma Organization International is to create a community of ACC patients and supporters who share information and hope in an atmosphere of support, while working together to help develop a cure for ACC.
Adenoid Cystic Carcinoma Research Foundation
The Adenoid Cystic Carcinoma Research Foundation (ACCRF) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.
Brain Tumour Alliance Australia (BTAA)
The only national Australian organisation for the people with brain tumours, their family and caregivers. BTAA provides information resources to newly diagnosed patients and their families and provides a free call 1800 number for peer support.
International Brain Tumour Alliance (IBTA)
The International Brain Tumour Alliance (IBTA) was established during in 2005. It seeks to be an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours.
Chronic Myeloid Leukaemia Advocates Network
The Chronic Myeloid Leukaemia Advocates Network is a global membership only 'network' for CML patient group organisers who share current medical information and practice in order that members can support their specific patient communities.
Chronic Myeloid Leukaemia Support Group
The Chronic Myeloid Leukaemia Support Group is an online patient support group to serve the unmet needs of people diagnosed with chronic myeloid leukaemia.
H.E.A.R.D. Support Group
H.E.A.R.D. Support Group and Registry for people with Hemangioendothelioma (HE), Epithelioid Hemangioendothelioma (EHE), And Related vascular Disorders.
Kidney Health Australia
Kidney Health Australia works to save and improve the lives of Australians affected by kidney cancer and kidney disease by providing education, advocacy, resources and support to those affected by a kidney cancer diagnosis.
PNET Cancer Foundation
The PNET Cancer Foundation has been established to raise money to support medical and scientific research into this rare and aggressive brain cancer that affects children and teenagers. The Foundation aims to accelerate research to find better treatments and a cure for this disease.
Sarcoma Net (US)
by George Demetri, sarcoma specialist, Director of the Center for Sarcoma and Bone Oncology at the Dana-Farber Cancer Institute.
A website for guidance, education and support.
Sarcoma Foundation of America
The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find new and better therapies with which to treat patients with Sarcoma.
The Unicorn Foundation (Australia)
The Unicorn Foundation (New Zealand)
The Unicorn Foundation is Australia and New Zealand's only not for profit medical charity supporting patients with Neuroendocrine Cancers (NETs). The mission of the Unicorn Foundation is to assist and support patients and carers, lobby for access to new and appropriate treatments, raise awareness about NETs and support research in the area of neuroendocrine cancers.