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CART-WHEEL is helping cancer researchers understand the characteristics and behaviour of rare tumors.
The WhiMSICAL study is now capturing data relating to COVID-19 and welcomes WM patients to register or update their data.
Our questionnaire collects information from people all over the world, so we can build a rare tumor database to address some of the barriers facing effective research into rare types of tumors, rare subtypes of common cancers and inherited rare tumor predisposition.
Research in rare cancers is challenging due to difficulty in finding cases. Individually rare cancers affect small numbers of patients but when put together they make up over 20% of all cancers diagnosed each year. Yet they receive only about 5% of research funding and attention.
Patients the key to success of WhiMSICAL research
Read about recent changes to the online questionnaire, including new questions which focus on psychosocial issues.
Providing the technology to link together the anonymous patient information from all of these different databases in a way that maintains the privacy and security.
RCA has been established to provide support, education and government advocacy for patients with rare and less common cancers and their carers.
This site is dedicated to the memory of Danny Pollak, who lost his life to a rare cancer, aged 29. See full dedication
© 2021 Cart-Wheel (BioGrid Australia)