Helping Understand Rare Tumours
CART-WHEEL is helping cancer researchers understand the characteristics and behaviour of rare tumours.
The WhiMSICAL study is utilising the CART-WHEEL questionnaire
Collecting information from people all over the world
The main objective of the CART-WHEEL.org rare tumor database is to serve as an ethically-approved data portal for consumer-driven research into rare tumors.
Participants
CART-WHEEL.org is designed to collect information from people such as you, who have rare cancers/tumors.
Health Professionals
We partner with cancer consumers to be actively involved in research, making it possible for researchers to have sufficient cases for their studies.
Research & Trials
We partner with cancer consumers to be actively involved in research, making it possible for researchers to have sufficient cases for their studies.
We need you to keep CART-WHEEL in motion
Our questionnaire collects information from people all over the world, so we can build a rare tumor database to address some of the barriers facing effective research into rare types of tumors, rare subtypes of common cancers and inherited rare tumor predisposition.
Collect, Analyse, Research & Treat
Research in rare cancers is challenging due to difficulty in finding cases. Individually rare cancers affect small numbers of patients but when put together they make up over 20% of all cancers diagnosed each year. Yet they receive only about 5% of research funding and attention.
Over
of all cancers diagnosed each year are rare
Only
of research funding and attention are given to rare cancers
The Latest in Rare Cancer
A BioGrid Initiative
Providing the technology to link together the anonymous patient information from all of these different databases in a way that maintains the privacy and security.
Consumer Partner
RCA has been established to provide support, education and government advocacy for patients with rare and less common cancers and their carers.
Meet Our Partners
